To whom it may concern,
Im pretty certain you might pass over this letter like you do to many of your non-lobbying constituents, but I figured if I have a voice, I might as well use it.
I’m a thirty something year old woman who was dealt with a bad hand at life by being born legally blind. As a result, I’m only able to work part time despite wanting so much to be a so called contributing citizen that your Republican party wants me to be. Working full time is a dream of mine that I’m willing to chase, but in order to do so, I need access to migraine reducing medication that will slow my Nystagmus down and help prevent eye strain, much needed when my line of work requires both being outdoors and on a computer system.
Since I moved to Florida five years ago, I was able to get on SSDI after being on SSI much of my adult life after working enough credits to do so. SSDI helps pay my rent and my bills, especially when my weather dependent work at a water park reaches slow season. It is a godsend that is much needed.
However, Medicare was given to me with no prior knowledge back in 2015. Apparently somewhere along the line, my Medicare card got lost in the mail, and it wasn’t until recently while trying to pick up a Marketplace Plan after you decided to pull my Medicaid from my SSI days that I found out this Medicare exists. Because of this plan existing, I had to pull out of Marketplace because I apparently don’t need it.
Today I get a letter from Social Security that marks you as the culprit for no longer paying my premiums, resulting in a mad dash to figure out how to pay my rent next month when my hours at my part time job are for the time being non existent.
Keep in mind, with the exception of a stretch of 6 months working full time at Disney up until I eventually was forced to resign due to my physical and mental health, I never got the chance to see a doctor, nor have I ever had to check into a hospital. Medicaid was useless to me since no doctors were accessible to me, and Medicare is essentially just as bad, If not worse. My disabilities prevent me from driving, and since my disability isn’t considered developmental or intellectual, I can’t get the help to navigate a healthcare system that developed shortly after my 26th birthday, when I was dropped off my parents plan.
Looking at the four hundred something dollars I need to pay up for a service I never used, for a service that no doctor within an easy one bus route or a cheap Uber ride accepts is like Prince John robbing the blind villager in Robin Hood. And sadly, I’m that villager.
My day tomorrow will be spent camping out on hold for hours on end with social security hoping to God that they allow me to cancel all of this so I don’t have to worry about being kicked out of my home, along with hundreds of other Americans being dealt with this harsh blow right now.
I would have to say I am fortunate enough to be able to squeeze by without a lot of specialty visits, considering my disabilities aren’t life threatening as of yet. But then again how will I know if the broken health care system won’t even take a glance at me without being armed with a Blue Sheild?
But I look at others who have more prominent disabilities than mine who can’t even get out of bed without help from a waiver program, many who don’t have the opportunities like me to work at least a few hours a week to have some food money come Friday morning. It makes me wonder if you are doing this to them as well. How many people’s lives will be in jeopardy because of this? How many deaths and misdiagnosisis will be made from people like me ignoring my needs because a roof over my head is more important than medication?
I ask this of you, the men and women who sworn on a bible no less to protect us Americans and put our best interest in mind. How is taking more money from the already fixed incomed going to help them? We already know it’s helping you in your lavish vacations and fancy dining sets.
I urge you as leaders of this great state and country to take a step back and help your fellow men and women who just want to have the same opportunities and access to healthcare as everyone else. Access to a doctor shouldn’t be a luxury, it should be a necessity like our armed forces and infrastructure.
Isn’t it about time those who through no fault of their own have been dealt with disability and poverty get the help they need so they can function in a society that should be open to them? Isn’t it about time you stop for once and reach out to those in need beyond a cheesey campaign ad photo op and do the right thing? I’m sorry it’s taking money out of your raises, but I’m sure the God you believe in so much to the point of plastering his name on school buildings will Fast Pass your way into heaven for taking the time to help those in need.
Help us with a hand up in healthcare, and please show us compassion. Everyone needs equal access to healthcare, no matter the wallet size.
Now if you excuse me, I got some phone calls to make.
A SSDI Recepient
A Registered Voter
And more specifically
AN AMERICAN CITIZEN CHASING THE AMERICAN DREAM.